A week before Mother’s Day, I walked out of a bookstore in Washington, D.C., got in my car, and backed straight into a parked pickup truck. I actually watched the whole thing unfold on my car’s rearview camera; it even took me a moment to stop after my bumper made contact. The gentleman sitting in the pickup truck seemed as surprised as I was.
The bookstore I had just come out of had a prominent display of Mother’s Day cards that caught me off guard. I found myself tearing up at the sight of them and left in a hurry, only to notice as I walked to my car that there was a mural painted on the side of a building that read “Call Your Mother” in giant letters. (I later learned it was the name of a delicatessen in that block of stores.)
Earlier that day, I was thinking that I was doing better than I expected just three weeks after my mother’s death. But maybe that’s how grief works. One moment you’re feeling fine, the next you’re in a fog because you’ve had a reminder of the person you’ve lost.
My mom’s death on April 21 was not unexpected. She was hospitalized in early March with a blood infection and moved from the intensive care unit to hospice five days later after doctors shared her prognosis: the only fix for her infection was major surgery, and they weren’t sure she was even a candidate. My dad and siblings and I ultimately decided the only choice was to honor my mother’s wishes in the living will she signed years before dementia set in. There would be no extraordinary measures taken, no artificial feeding tubes or intubation, no waiving of the Do Not Resuscitate order.
It was to be a tough end to a tough few months. As we anticipated, she didn’t understand why she had to move in January to the memory care unit at Brightview, a senior living facility, or why she and my father weren’t in the same room. She never stopped asking to go home.
I believe each member of my immediate family will count the first few months of this year as some of the hardest in our lives.
My parents both caught Covid three weeks after moving in, and what was left of my mother’s cognitive skills never returned. It was only a few weeks later that she was hospitalized and subsequently transported by ambulance from the ICU near Tarrytown to Calvary Hospital in the Bronx, a facility devoted to caring for people with advanced illnesses, many of them terminal.
We didn’t expect her to be at Calvary for long. A palliative care doctor at the ICU who met with our family to discuss options examined her and said she expected my mom would live “a small number of days.”
She cautioned that it was impossible to predict exactly when the end might come; it might be sooner or much later than a few days. She was right about that. My mother ended up living for another 5 ½ weeks.
During those weeks, we spent more time together as a family than we had since my siblings and I were in high school. Expecting the end to be imminent, I stayed at my sister’s house near Calvary for three weeks, then went home to Virginia for two weeks and returned for another week. My brother came back and forth from Boston and was also a lodger at my sister’s house. Throughout our comings and goings, my sister and dad went to the hospital every day.
I’m not someone who always looks on the sunny side of things. The month and a half my mom was hospitalized was a profound and dark period, to be sure. What surprised me, though, both at the time and in reflection, was that there was some beauty amidst the suffering.
One unexpected bright spot was the people we encountered at Calvary. Compared to the ICU, with its flurry of beeping monitors and people rushing in and out, Calvary was quiet and calm. But more impressive than the atmosphere was this group of individuals who have the capacity to work with the terribly ill every day. When I could bring myself to glance into other rooms as I walked up the hall, I saw people who were bloated, hazy, listless. It takes a special person to give compassionate care to the sickest among us day in and day out. And yet the nurses, aides, doctors and the social worker were, to a person, competent, gentle, and respectful with patients and their families. I found it stunning.
One of the first mornings we were there, I said to one of the nurses, “This must be a hard place to come to work every day.”
She looked confused. “No it isn’t. It’s a good place to work.”
Her brow furrowed and I was immediately embarrassed. I mumbled something about not being good with medical things before moonwalking away from the nurses’ station.
In addition to the superb group at Calvary, I was also touched by every kindness shown to me and to our family. Friends dropped off food, puzzles, bags of groceries. Drove me to and from the train station. Called, texted, and sent cards and flowers letting us know people were thinking of us. Arranged to have a meal delivered. Invited us over for drinks. Brought over a meal and spent an evening with us.
Gestures from my immediate family touched me too. My brother, who has made more than 30 lasagnas since the pandemic started as part of Lasagna Love, decided we needed a lasagna, brought down the ingredients from Boston, and made one for us. My sister, who quietly kept us all together, did scores of thoughtful things, including making me a sandwich and putting a Diet Coke in the car for me as I got ready to drive to the hospital the morning we were told that my mom was close to the end. My father continued to think about others during the saddest period of his life, showing up one morning with a birthday card and three wrapped books he had carefully chosen for my brother-in-law.
The small things mattered.
A book I read about palliative care as I traveled between New York and Virginia helped me feel more at peace with the situation. It was a reminder that death is natural and certain, and sometimes the best we can do is make sure our loved one is as comfortable as possible and then just walk alongside them.
My last real interaction with my mom came two weeks before she died. I walked into her room, took her hand, and said hello. Though it’s been quite a few years since I crossed a street holding her hand, it felt familiar. “Hi Toots,” she said softly, her voice hoarse but clear, and she pulled my hand up and kissed it, then smiled.
Perhaps the most unexpected outcome of my mom’s time in the hospital was that it made me less afraid of death. That may be in part because she was so diminished – so small and vulnerable, not at all as she was during the rest of her life – that there was no doubt this was her time to go. The mental and physical aspects of her life were over. We do only get a small number of days, after all, and hers were clearly done.
As with most mothers and daughters, ours was not a perfect relationship. There were frustrations and arguments over the years. But these last few months I have found myself coming back to one simple thought: I’m glad she was my mom.
I’m not sure either one of us could have hoped for more.